4 weeks later... still sick (long sorry!)

The day of my last post I decided to go to the ER that night. They sent me home after 10 mins which was a crock of crap. I went in with severe pain in my right upper quadrant of my stomach and 5x (sorry for the TMI) blood in my stool since 11 am. The doctor said I pulled a muscle coughing (I had the coughing stuffy nose crud week before) and a hemmorhoid and to follow up with my doctor a week later and prescribes me a LAXATIVE... no blood tests, no CT to look at stomach, nothing. Did this man not listen when I said I'd had FIVE that day??? Two days later I call my doctor's office because I can't get out of a ball the pain is so intense and the nurse (she's a total biotch on the phone and so nice to me in person because she recognizes me from the lab) says the doctor agrees with the ER report and to go to the walk in clinic or back to ER if it's "really that bad" in a snotty tone. This was at 3:45 in the afternoon and I called her at 8 am when they opened! How rude! So off to walk in clinic I go.

Dr. Reeves at walk in decides it's my gallbladder and orders a med 3x a day with food. I can't keep food in me at this point and it makes me feel like my stomach is going to explode. Orders pregnancy test, urine culture, and gives me a prescription. Tells me to hold out for Dr appt the following week and orders an ultrasound to take with me to doctor. Ultrasound comes back normal, just some granulomas in the spleen (sign of infection). My primary doctor cancels appt until after I get in for the ultrasound and because his office is so friggin busy it's yet another week before I can be seen there.

Next week I decide I can't wait, the pain is getting insane and go back to walk in because my doctor can't budge to get me in. I'm pissed off and frustrated because it's been 2 weeks of not eating and intense pain at this point and yet to see my own darn doctor. This is Dr. Porvaznik who says no it's not your gallbladder or you'd have a stone I think it's an ulcer. Has me drop the other meds and gives me new meds. Orders a CMP, Amylase, and CBC labs. The girl blew a vein because I'm so dehydrated and I'm normally an easy stick. I'll be seeing my doctor in a few days. I'm down 10 pounds. from appt week prior. Dairy is the worst thing to eat. I ate ice cream my boss brought me and spent 2 days in bed feeling like I could puke at any second.

I meet with my doctor and he says no he doesn't think it's an ulcer it sounds more like gallbladder based on pain and symptoms. Discontiues ulcer meds and orders a cholescintigraphy and EGD scope down the throat for last week while he's gone in case that's normal.

Fast forward to last Monday. I go for the cholescintigraphy. The guy can't get a vein anywhere other than palm side of my wrist and blows it. Test ends up coming back normal. I go to walk in clinic because on Sunday I noticed I have a lump pop up in my left upper abdomen. This makes me really start to panic. I had a friend who had metal rods like mine and he had random infections start popping up after battling sinuses and bronchitis for a month and his body had started fighting his rods... it was a mess. This doctor says it's my lymph nodes and I clearly have an infection somewhere (no fever, in fact i've been in the 97s most days) and orders a barium swallow CT for Friday. I go back on Tuesday because my hands and legs feel weak and shaky like when you first get out of the shower and I'm anxious and crying. I'm frustrated because I want answers and to know if I should keep going to work. Like am I getting sicker going to work and being around the germs? Am I putting patients/coworkers at jeopardy by being there? This doctor says she's not even sure why I'm there because they can't seem to help me and wants to send me back to ER... remember what happened a few weeks ago? No thanks and you already took my copayment biotch! This doctor says it's not my lymph nodes, she thinks it's just pockets of fat popping up since I'm losing so much weight (WTF lady????) and they hurt because I can't keep my hands off my stomach so I'm making them hurt. I'm an emotional wreck and scared to talk after this because she made me feel crazy :( Orders the EGD my primary doctor has pending for Thursday.

Thursday comes and I go to IMA Endoscopy for my scope. Dr. Selo performs it. He's really nice and actually listens and so did his nurses. He doesn't see any ulcers but takes biopsies for H Pylori tests and he also suspects Celiac's Disease. Why had anyone else not thought of this? Googling it I have 9/10 gastrointestinal symptoms, along with the shaky limbs, messed up menstral cycles, sudden lactose intolerance, etc. I'm still waiting to hear back on biopsies.

Friday I do Barium CT (wouldn't recommend it ugh) and I hear back yesterday that I have a 1 cm lesion in my liver. I have to do a repeat in a month to track it.

So here I am, no official diagnosis. I've had to drop a class because I was missing a test last Thursday and going to have to take a 0/100 on both lab and lecture tests. He would only let me make it up this Monday and I had Federal Jury Duty so he recommended I withdraw. 11 weeks of class down the drain. I'm down a pants size and still want to do nothing but sleep and hug a pillow. Yesterday was 4 weeks. So I guess we'll see if I'll be living a gluten free life after these final biopsies come back.